Post 3: Social Justice and the importance of research

I truly enjoyed working with Dr. Yule and her team at Boston Medical Center this past summer. Last summer, I was an intern at MGH in one the psychology labs and it was not the experience I was looking for or expected. I now realize that my experience last summer was not representative of research and after my internship this summer, I am considering a career in research. Not all research experiences are the same, and not all work environments are the same, and it is something I wish I knew before I started this summer and before I generalized research experiences. But the reality is that you can’t know what a work environment will be like until you’re already there, in my case, doing the research.

While in this position this summer, I gained a deeper understanding of social justice work. Social justice is all about distributing resources fairly and treating everyone equitably. But sadly, when we take a look at today’s world, this isn’t happening in many places. I also learned the causes and consequences of social injustices from talks with psychiatrists, mental health counselors, coworkers, and from the research we were doing. We all need to work as a team to work towards dismantling all these barriers around health disparities, and this is exactly what Dr. Yule and her team are aiming for.

Before starting this position, I did not see how social justice was relevant to research, but as I began to work on projects with my coworkers, I realized that social justice work takes many forms. Many of these health issues that I talk about in this blog and in my previous blogs are often overlooked. It is the reason why social justice work is crucial in underserved populations to aid the growth of communities. The projects I worked on show how important research is during the times that we are living in, especially on evidence-based treatments. Despite how research has shown their efficiency, some providers are reluctant to use them. Research also demonstrates how important it is to address minority populations who lack access to health care, which could be due to structural racism. As a result, we see language barriers in place and people living in high crime and poverty neighborhoods, among other factors.

Earlier this year, my primary investigator received a grant from an ongoing initiative that the NIH has called “Helping to End Addiction Long Term.” This is an effort designed to speed scientific solutions to stem the national opioid public health crisis. It is also an effort to improve prevention and treatment strategies for opioid misuse and addiction, and to enhance pain management. As part of this project, I worked on a task that included assisting with implementing screening for substance use disorders in behavioral health by identifying which screening tools and questionnaires have been translated into Spanish and Haitian Creole, and assisting with Spanish translation. Translating the screening tools into these languages is due to the hospital having a lot of Spanish and Haitian Creole-speaking patients. If we don’t have screening tools available in their language, we cannot help these patients and they are more likely to go untreated. This creates a barrier for them when accessing care that they wouldn’t otherwise face if they were native English speakers. This is why we need to work together to help them overcome these barriers to treatment. Once we are done with project, other researchers will be able to use the translations and other patients will be able to be treated.

A “Thank you” e-card signed by Dr. Yule and her team

I also worked on a systematic literature search focused on screening for substance use in behavioral health clinics. It is important to identify individuals with psychiatric disorders who have a co-occurring substance use disorder to address the disorders that are coexistent in treatment. While there is already a policy-level mandate to systematically screen patients for substance use disorders and deliver brief intervention to treatment and referral to treatment, the majority of the efforts have been concentrated in primary care. Substance misuse is at a higher rate in behavioral health populations, and therefore it is an entry point in getting people who might have a substance use disorder. A decision needs to be made because many people that need to be screened are not being screened. This gives the opportunity for clinicians to intervene early and be able to help their patients before it takes a toll on their patient’s overall health.

I also hope that this systematic review is able to inform other researchers about the importance of implementing screening in settings outside of primary care. We are also using another systematic review on treatment outcomes in adolescent girls to get a better sense of what is out there, in order to inform future research to provide better gender-specific treatments in the future. Lastly, the Department of Public Health will be able to make better informed decisions in terms of policies for medication management in residential treatment programs through another project we worked on and presented to them. All this work impacts social justice reform because, with systematic screening, we will be able to help patients who fall through the cracks in health care, and with systematic screening in place, it won’t be possible that someone who truly needs help will be left out.

Some advice I would give to someone else who wants to pursue an internship or career in my organization is that you have to be self-motivated. Also, if you can try to pick a good team, do so. Don’t be afraid to contact people if you have a question. Some people are always hesitant to do this. However, it’s good to ask if you are ever in that position how they did this or how did they get there. People do like to share their experiences.

Post 2: Structural racism and COVID-19

Webinar given by Dr. Ayana Jordan

In many of the classes that I have taken in the department of Health: Science, Society and policy at Brandeis, we have talked a lot about the social determinants of health, structural racism, health disparities and how it affects people’s health. Many people of color in the U.S. have a scarcity of resources, live in poverty, are an underserved community and are at higher risk of developing health problems given their environment. Therefore, they are also less likely to get the support or help to overcome it.

Now with COVID-19, hospitals aren’t having regular in-person appointments unless it is absolutely necessary and so patients have their appointments over the phone. So, as we see the rise of telemedicine, we also see a rise in disparities. At the beginning of last month, my primary investigator sent out an email to our research team recommending us to watch a webinar called “COVID-19 is Terrible, But I’m More Likely to Die from Structural Racism” by Dr. Ayana Jordan. At some point in her webinar she said, “Tell me your zip code and I will tell you your life expectancy,” which really stood out to me.

If you think about this and look at the child opportunity index,  you will see how Latinos and black children are the ones that mostly live in low opportunity areas and where there are high crime rates. What does this mean? It means that they live in poor neighborhoods where they don’t have access to a nearby hospital, or access to grocery stores to buy healthy food or even access to a good school. They just don’t have key resources like knowledge, money, power, prestige and beneficial social connections that can be used in numerous situations in different ways. But more importantly, these resources can be used a protective factors.

We all know how social conditions are linked to health outcomes. They live in this cycle that is never ending, and it’s all due to structural racism. Dr. Jordan also talked about how black people are more likely to get infected by Covid-19 due to structural racism because many of them hold jobs where they are not able to social distance and have jobs that are considered essential. Another factor is housing, meaning they may live in overcrowded conditions.

There are also natural barriers to social distancing, and one of them is lack of internet. She mentioned how everyone is talking about how you can view your doctor through technology, but many people don’t have access to internet. One of the projects I have been working on with the outpatient psychiatry clinic is calling patients with existing appointments to help them set up their upcoming video appointment. Only 66% of black people are able to have Telehealth appointments compared to 80% of white people. And all these injustices are inherently based on racist policies that dictate how people in the black race are able to grow, live, work and age, and people in power aren’t doing anything to help.

Post 1: My internship at Boston Medical Center

This summer, I am a research assistant for Dr. Amy Yule in the Department of Psychiatry at Boston Medical Center. Dr. Yule works with youth ages 14 to 26, alongside their families, with substance use disorders and co-occurring psychiatric illness. Apart from clinical care, she is also involved in clinical research. I chose to work with her this summer because I am interested in learning about conducting research in a clinical setting and because the work that I am doing is related to substance use disorders. As of now, I am working on various projects, including identifying which screening tools and questionnaires have been translated into Spanish and Haitian Creole, assisting with Spanish translation. My work will improve screening for substance use disorders in behavioral health.

The screening tools are also part of the National Institute of Health HEAL (Helping to End Addiction Long-term) initiative. This is an effort led by the NIH to speed scientific solutions to stem the national opioid public health crisis. I am also working on a systematic literature search focused on screening for substance use in behavioral health clinics and assisting with a systematic review of substance use disorder treatment outcomes among adolescent girls.

Boston Medical Center is driven by a commitment to care for everyone by providing traditional medical care and offering programs that enhance overall health. This supports the mission of the hospital, which is to provide exceptional care. Physicians know that research is crucial not only for the information they learn about what treatments work better than others, but also for what they can learn about risk factors, long-term effects of treatment, populations trends, and outcomes. This all ties in with work that I am doing this summer.

The hospital has many Spanish and Haitian Creole patients who may go untreated or misdiagnosed because they don’t speak English and are not able to fill out screening tools that are not available in their language. As a result, they don’t have access to health care like English speakers do. It is the main reason why we’re working to decrease health disparities between non-English speakers and English speakers. Additionally, there is no gender-specific treatment that explores options for adolescent girls. Since this is an area in the field that is lacking, we are trying to dive into the literature and find ways to bridge this gap. By translating screening tools and questionnaires into Spanish, we will be able to diagnose and treat more patients.

There are many small steps we are taking that will lead to bigger steps. For example, by translating the screening tools–part of the systematic process of validating the tools–into Spanish, other researchers will be able to use them after we are finished with our ongoing HEAL project. We are currently working on a systematic review that we will use to get a better sense of what is out there, which will inform future research that may eventually lead to the discovery of better gender-specific treatments. With these efforts, the Department of Public Health will also be able to make more informed decisions in terms of policies for medication management in residential treatment programs.

For us, progress will be having other people give us feedback on the screening tools and, once they are validated, using them to treat more patients.

– Maria Estevez